Resources & Links

Bradford Dementia Group www.bradford.ac.uk/health/dementia/

Alzheimer’s Society alzheimers.org.uk/

For information about dementia. Publishes guides and information for people with dementia, families and carers and professionals. Offers training and publishes training guides. Helpline and live online advice service for people with dementia and carers. Promotes their Dementia Friends initiative.

The Campaign to End Loneliness info@campaigntoendloneliness.org.uk

The Campaign to End Loneliness aims to create connections in older age and was started in 2010 by four founder partners: Age UK Oxfordshire, Counsel and Care, Independent Age and WRVS. It is funded by the Calouste Gulbenkian Foundation.

Carers UK www.carersuk.org/Home

Campaigning organisation that provides information, advice and support on a wide range of relevant issues to carers. Downloadable publications and information.

Dementia Action Alliance www.dementiaaction.org.uk/

The alliance comprises organisations committed to transforming the lives of people with dementia and their carers. To become a member, organisations sign up to the National Declaration for England and submit an action plan setting out how they are delivering the outcomes described in the Declaration.

Dementia Pathfinders CIC http://dementiapathfinders.org

A social enterprise delivering therapeutic care and support for people with dementia and their families, and programmes of education and learning for people working in the dementia care field.

Dementia without walls http://dementiawithoutwalls.org.uk

The JRF (Joseph Rowntree Foundation) programme, Dementia without Walls finished at the end of 2015 … but its legacy lives on. In this independent website – supported by JRF and other key partners – we will share many inspiring resources: images, videos, stories, blogs, audio diaries, reports and toolkits. The voices and views of people with dementia themselves will resound through every page.

DEEP http://dementiavoices.org.uk/resources/deep-guides/

DEEP guides aim to support the involvement of people with dementia. Some were created for DEEP groups or individuals with dementia, others are for organisations wanting to work well with people who have dementia

Dementia Positive www.dementiapositive.co.uk/

‘celebrating the strengths, creativity and insights of people living with dementia’

Foundation for people with learning disabilities

Sensory impairments are more common in people with learning disabilities than the general population

http://www.learningdisabilities.org.uk/help-information/learning-disability-a-z/s/sight/

Innovations in Dementia CIC http://www.innovationsindementia.org.uk/index.htm

We work nationally with people with dementia, partner organisations and professionals with the aim of developing and testing projects that will enhance the lives of people with dementia.

Life Story Network CIC http://www.lifestorynetwork.org.uk

LSN works with a range of partners and individuals to promote the value of using life stories to improve the quality of life and wellbeing of people and communities, particularly those marginalised or made vulnerable through ill health or disability.

Macular Society www.macularsociety.org

The society offers information and support to people experiencing macular degeneration. Provides a range of leaflets and information about the condition including learning new ways of seeing.

Music Mirrors http://www.musicmirrors.co.uk

A Music Mirror is a brief life story in our own words, with sounds and music embedded to spark memories later.
Not a playlist but a memory toolkit… Free advice on how to make your own music mirror for free.

Nuffield Council on Bioethics www.nuffieldbioethics.org/dementia

‘Exploring ethical issues in biology and medicine’

Pocklington Trust www.pocklington-trust.org.uk/

The trust provides a variety of support services of people with sight loss from their centres in London and Plymouth. Their strategy is aligned to the UK Vision Strategy and they provide a wide range of services including specialist housing, befriending, activities and information. The undertake research, which is published as useful evidence and practice.

RemindMe Care http://www.remindmecare.com/introduction/

ReMe provides innovative electronic tools for the delivery of person-centred care, including Life Story work and recording of daily activities which can be shared remotely between families and carers.

Scottish Dementia Working Group http://www.sdwg.org.uk

The SDWG is a national campaigning group, run by people with dementia.

SeeAbility www.seeability.org/

Works with adults who are visually impaired and have other disabilities. The offer training and advice, supported and residential living.

SENSE http://www.sense.org.uk/

National charity that supports and campaigns for children and adults who are deafblind or have sensory impairments. Type in ‘dementia’ for information relating to older people and people with dementia in relation to dual sensory loss.

Stirling Dementia Development Centre dementia.stir.ac.uk/

DSDC draws on research and practice from across the world to provide a comprehensive up-to-date resource n all aspects of dementia. They provide education and training courses, have a resource library, influence policy, research and development and are internationally renowned for their work.

Offers undergraduate and postgraduate courses; training; practice development and consultancy; research; Dementia Care Mapping (DCM)